Muscular Dystrophy UK - Trustees
Your Russam contact
The Organisation
Muscular Dystrophy UK is the leading charity for over 110,000 people in the UK living with one of over 60 muscle wasting and weakening conditions.
We connect our community of people living with muscle wasting and weakening conditions, and all the people around them, friends and family, healthcare professionals and scientists, so that everyone can get the healthcare, support and treatments needed to feel good, both mentally and physically.
- We support people through every stage of their life, from the point of diagnosis to living the best life possible.
- We share expert advice and support people to live well now.
- We fund ground-breaking research to understand the different conditions better and lead us to new treatments.
- We work with the NHS towards universal access to specialist healthcare.
- Together, we campaign for people’s rights, better understanding, accessibility, and access to treatments.
The Role
This is a very exciting time for Muscular Dystrophy UK. We will shortly publish our bold new strategy to guide our work over the next decade. We have big ambitions — and with a strong financial foundation, diverse income streams, and robust external partnerships, we’re ready to scale our impact.
We are seeking passionate and committed individuals to join our Board of Trustees. As a Trustee, you will play a vital role in setting the strategic direction of the charity, ensuring its financial stability, and safeguarding its mission to support people affected by over 60 rare and progressive muscle wasting conditions.
Person Specification
Alongside the skills and experience outlined below, we’re looking for engaging individuals who bring a genuine passion for joining the Board at Muscular Dystrophy UK.
- A strong commitment to Muscular Dystrophy UK’s values and goals
- Strong strategic leadership knowledge and experience
- Excellent communication and teamwork skills
- Understanding of governance responsibilities within a charitable organisation
- Willingness to act as a support and critical friend to the executive team
In addition, we would particularly welcome applications from candidates with experience of any of the following:
- Investment management
- Clinical experience of neurological conditions
- Clinical research experience
- Human resources and culture development
- NHS health and care systems and commissioning
We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.
Further Information
For comprehensive information about Muscular Dystrophy UK and the role of Trustee, please download the Information Pack.
How to Apply
If you are interested in the opportunity to join the Board of this amazing charity, please provide the following with your application:
- An up to date CV with details of two referees (we will not contact them without your prior permission)
- A support statement (no longer than two A4 sides) which addresses how you meet the main criteria and explains your motivations for applying
All applications are being handled by our recruitment partner, Trustees Unlimited (part of the Russam group).
Applications should be uploaded via the Trustees Unlimited website:
Closing date for applications: Monday 22nd September 2025
Interviews with Muscular Dystrophy UK: 7th or 14th (AM) October 2025
